Shon has nearly a decade of lived experience caring for her mother, who has been diagnosed with cognitive decline.

Her Story

Walking alongside her mother through this journey has shaped how Shon sees health, dignity, and advocacy. She has seen firsthand how memory loss and confusion don't just affect the person with the diagnosis — they reshape the entire family's daily life, decisions, and emotional landscape. Being her mother's care partner has required patience, creativity, and constant learning, but most of all, it has deepened her commitment to speak up for those who can't always speak for themselves.

Because of this experience, Shon has become a strong advocate for people living with cognitive decline, especially those who may not have a voice, support system, or access to information. Advocacy, to her, means making sure their needs are seen, their humanity is honored, and their care is not an afterthought. It also means pushing for systems — medical, social, and community-based — that recognize and support both the person with cognitive changes and the people who care for them. She believes no one should have to navigate this alone or in silence.

Shon also believes it is absolutely critical for people who may be at risk of cognitive decline to be tested early. Early evaluation doesn't just give a label — it gives time. Time to plan, to adjust, to access resources, and in some cases, to explore treatments or lifestyle changes that may slow progression. Knowing your risk, including your family history and genetic factors, can be empowering rather than frightening when paired with good information and support.

She also sees growing importance in the use of biomarkers and genetic testing as tools in this process. When used thoughtfully and ethically, these tools can help people understand what they're facing earlier, make informed decisions, and participate in research that may improve care for future generations.

Her mother's journey has made this deeply personal. Shon doesn't just care about cognitive decline in theory — she lives with its impact every day. That's why she advocates for early testing, awareness of genetic and biological risk, and stronger support for individuals and families affected by cognitive decline, especially those who might otherwise go unheard.

Advocacy & Experience

Shon has shared her story publicly, including through a feature in the Twin Cities Pioneer Press on her journey to learn her own dementia risk through self-advocacy.

In the News

I found out my dementia risk because of my own advocacy — Twin Cities Pioneer Press